Referrals, Agencies and Support Groups 
Administration on Intellectual and Developmental Disabilities (AIDD)
AIDD seeks to improve and increase services for individuals with developmental disabilities that promote independence and inclusion in society. This website contains information on AIDD’s programs and other helpful resources, such as a developmental disabilities program directory by state and grants and funding information.
American Academy of Pediatrics
The American Academy of Pediatrics comprises pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health, as well as more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents
Center for Parent Information and Resources (CPIR)
The CPIR serves as a central resource of information and products to the community of Parent Training Information Centers and the Community Parent Resource Centers, so that they can focus their efforts on serving families of children with disabilities.
Department of Education
The U.S. Department of Education (DOE) has resources to assist with the educational needs of children with developmental disabilities.
The DOE’s Technical Assistance and Dissemination Network (TA&D Network)
Provides links to a variety of other websites and online resources that focus on special education issues, such as policy, technology, curricula and parent trainings.
The DOE’s Office of Special Education and Rehabilitative Services (OSERS) Provides support to parents and individuals, school districts, and states in three main areas:
First Signs is dedicated to educating parents and professionals about early identification and intervention for children at risk for developmental delays and disorders, including autism.
Insure Kids Now!
Each state provides no-cost or low-cost health insurance coverage for eligible children through Medicaid and the Children’s Health Insurance Program. This website has basic facts about these programs. It also has links to each state’s insurance program for children, where you can learn who is eligible for the programs, how to apply, and what services are covered. Information is available in English and Spanish.
MedlinePlus, a service of the U.S. National Library of Medicine and the National Institutes of Health, provides information on many different types of developmental disabilities, as well as resources on prevention and screening, research, statistics, law and policy, and more.
My Child Without Limits
My Child Without Limits provides resources for families of young children from birth through 5 years of age with developmental delays or disabilities, as well as for professionals who work with these individuals. The site also has a national resource locator where visitors can find local service providers, community organizations, and government agencies.
National Association of Councils on Developmental Disabilities (NACDD)
The NACDD supports state and territorial councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of individuals with disabilities and their families.
National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)external icon
NIDILRR is a federal government grants-making agency that sponsors grantees to generate new disability and rehabilitation knowledge and promote its use and adoption.
National Institutes of Health (NIH)
Several institutes within the NIH conduct and fund research about developmental disabilities. They also offer information to the public and educational programs for health professionals. They include:
National Eye Institute (NEI)
The NEI studies ways to prevent and treat eye diseases and vision problems and to improve the lives of people with these conditions.
National Institute of Child Health and Human Development (NICHD)
The NICHD conducts and supports research on all stages of human development to better understand the health of children, adults, families, and communities, including those with developmental disabilities.
National Institute on Deafness and Other Communication Disorders (NIDCD)
The NIDCD studies hearing loss, deafness, and problems with speech and language.
National Institute of Mental Health (NIMH)external icon
The NIMH studies mental illness and behavior problems, including such conditions as autism, attention-deficit/hyperactivity disorder, and learning disabilities.
National Institute of Neurological Disorders and Stroke (NINDS)external icon
NINDS studies the causes, diagnosis, treatment, and prevention of brain and nervous system disorders such as cerebral palsy and epilepsy.