Research involving human subjects must follow certain ethical standards to make sure the subjects are not harmed. Such harm can be quite severe in medical research unless certain precautions are taken. For example, in 1932 the U.S. Public Health Service began studying several hundred poor, illiterate African American men in Tuskegee, Alabama. The men had syphilis, for which no cure then existed, and were studied to determine its effects. After scientists found a decade later that penicillin could cure this disease, the government scientists decided not to give penicillin to the Tuskegee men because doing so would end their research. As a result, several of the men died from their disease, and some of their wives and children came down with it. The study did not end until the early 1970s, when the press finally disclosed the experiment. Several observers likened it to experiments conducted by Nazi scientists. If the subjects had been white and middle class, they said, the government would have ended the study once it learned that penicillin could cure syphilis (Jones, 1981).
In a study that began in 1932 of syphilis among African American men in Tuskegee, Alabama, government physicians decided not to give penicillin to the men after it was found that this drug would cure syphilis. Wikimedia Commons – Public Domain
Fortunately, most sex research does not have this potential for causing death or serious illness, but it still can cause other kinds of harm and thus must follow ethical standards. The federal government has an extensive set of standards for research on human subjects, as do the fields of psychology, sociology and social work.
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One of the most important ethical guidelines in sexology and other human-subject research concerns privacy and confidentiality. Researchers should protect the privacy and confidentiality of their subjects. When a survey is used, the data must be coded (prepared for computer analysis) anonymously, and in no way should it be possible for any answers to be connected with the respondent who gave them. In field research, anonymity must also be maintained, and aliases (fake names) should normally be used when the researcher reports what she or he has been observing.
In 1970 a sociology student conducted a study, which ultimately led much debate among social science researchers when it came to light. Laud Humphreys studied male homosexual sex that took place in public bathrooms. He did so by acting as the lookout in several encounters where two men had sex; the men did not know Humphreys was a researcher. He also wrote down their license plates and obtained their addresses and a year later disguised himself and interviewed the men at their homes. Many sociologists and other observers later criticized Humphreys for acting so secretly and for violating his subjects’ privacy. Humphreys responded that he protected the men’s names and that their behavior was not private, as it was conducted in a public setting (Humphreys, 1975).
These and other studies (Reverby, 2009) led to increasing public awareness and concern regarding research on human subjects. In 1974, the US Congress enacted the National Research Act, which created the National Commission for the Protection of Human Subjects in Biomedical and Behavioral Research. The commission produced The Belmont Report, a document outlining basic ethical principles for research on human subjects (National Commission for the Protection of Human Subjects in Biomedical and Behavioral Research, 1979). The National Research Act (1974) also required that all institutions receiving federal support establish institutional review boards (IRBs) to protect the rights of human research subjects. Since that time, many private research organizations that do not receive federal support have also established their own review boards to evaluate the ethics of the research that they conduct.
Institutional Review Boards (IRBs)
Institutional Review Boards, or IRBs, are tasked with ensuring that the rights and welfare of human research subjects will be protected at all institutions, including universities, hospitals, nonprofit research institutions, and other organizations that receive federal support for research. IRBs typically consist of members from a variety of disciplines, such as sociology, economics, education, social work, and communications. Most IRBs also include representatives from the community in which they reside. For example, representatives from nearby prisons, hospitals, or treatment centers might sit on the IRBs of university campuses near them. The diversity of membership ensures that the complex ethical issues of human subjects research will be considered fully by a knowledgeable, experienced panel.
https://www.youtube.com/watch?v=U8fme1boEbE
Many sexological research projects involve the voluntary participation of all human subjects. In other words, we cannot force anyone to participate in our research without their knowledge and consent. Researchers must therefore design procedures to obtain subjects’ informed consent to participate in their research. Informed consent is defined as a subject’s voluntary agreement to participate in research based on a full understanding of the research and of the possible risks and benefits involved. Although it sounds simple, ensuring that one has actually obtained informed consent is a much more complex process than you might initially presume.
The informed consent process requires researchers to outline how they will protect the identities of subjects. This aspect of the process, however, is one of the most commonly misunderstood aspects of research. In protecting subjects’ identities, researchers typically promise to maintain either the anonymity or confidentiality of their research subjects. Anonymity is the more stringent of the two. When a researcher promises anonymity to participants, not even the researcher is able to link participants’ data with their identities. Face-to-face interviewing means that subjects will be visible to researchers and will hold a conversation, making anonymity impossible. In other cases, the researcher may have a signed consent form or obtain personal information on a survey and will therefore know the identities of their research participants. In these cases, a researcher should be able to at least promise confidentiality to participants.
Offering confidentiality means that some of the subjects’ identifying information is known and may be kept, but only the researcher can link identity to data with the promise to keep this information private. Confidentiality in research and clinical practice are similar in that you know who your clients are, but others do not, and you promise to keep their information and identity private. This may be difficult if the data collection takes place in public or in the presence of other research participants, like in a focus group study. Researchers also cannot promise confidentiality in cases where research participants pose an imminent danger to themselves or others, or if they disclose abuse of children or other vulnerable populations. These situations fall under a social worker’s duty to report, which requires the researcher to prioritize their legal obligations over participant confidentiality.
As you now know, researchers must consider their own ethical principles and follow those of their institution, discipline, and community. We’ve already considered many of the ways that researchers strive to ensure the ethical practice of research, such as informing and protecting subjects, but the practice of ethical research doesn’t end once subjects have been identified and data have been collected. Researchers must also fully disclose their research procedures and findings. This means being honest about subject identification and recruitment, data collection and analyzation, as well as being transparent with the study’s ultimate findings.
The Future of Sex Research
Understanding the history of sexology may be helpful in paving the way forward. In particular, note the progress with which cultural shifts curate a much different understanding of sex. For example, Kinsey’s finding that masturbation occurs among many people AND that it seems to benefit the experience of an individual’s sexual awareness within their future sexual relationships was shocking when it was first presented. Now, it’s not just completely acceptable, masturbation as a form of self awareness is encouraged by psychologists, sexologists, and medical providers. So cultural shifts matter when it comes to what we consider acceptable in terms of research and sexual data.
This, combined with an ongoing conversation around ethics, becomes important when we consider the future of sex/sexuality research. How do we ethically continue and expand the map of neurological responses to pleasure? How do technologies such as augmented reality fit our paradigm? What does it mean to have sex with robots?
https://www.youtube.com/watch?v=dRv70r5F_Ok
For more, check out Sex With Robots – Kate Devlin TEDx Talk
These questions are at the very tip of the iceberg, so to speak. What other considerations might be at play when it comes to research on all things sex?
Licenses and Attribution
Introduction to Sociology: Understanding and Changing the Social World by University of Minnesota is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License, except where otherwise noted.
Psychology by OpenStax is licensed under a Creative Commons Attribution 4.0 International License, except where otherwise noted.
The section on The History of Scientific Investigations of Sex was taken from the Psychology of Human Sexuality by Don Lucas and Jennifer Fox is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. Permissions beyond the scope of this license may be available in our Licensing Agreement.
UPEI Introduction to Psychology 1 by Philip Smith is licensed under a Creative Commons Attribution 4.0 International License, except where otherwise noted.
Adaptations: Reformatted. Modified content for language, application to subject and cohesion.
The following videos have this license: All Rights Reserved. License Terms: Standard YouTube license.
Crash Course. (2018). Henrietta Lacks, the Tuskegee Experiment, and ethical data collection: Crash course statistics #12. https://www.youtube.com/watch?v=CzNANZnoiRs
U.S. Department of Health and Human Services. (2018). How IRBs protect human research participants. https://www.youtube.com/watch?v=U8fme1boEbE
Love & Sex with Robots. (2016). Would you have sex with a robot? | Goldsmiths research questions. https://www.youtube.com/watch?v=dRv70r5F_Ok
References
Hyde, J. S., & DeLamater, J. D. (2017). Understanding human sexuality. McGraw-Hill.
Introduction to Sociology: Understanding and Changing the Social World by University of Minnesota is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License, except where otherwise noted.
Psychology by OpenStax is licensed under a Creative Commons Attribution 4.0 International License, except where otherwise noted.
The Psychology of Human Sexuality by Don Lucas and Jennifer Fox is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. Permissions beyond the scope of this license may be available in our Licensing Agreement.
Tilley, M. (2015). Happy endings: the ins and outs of clinical sexology. The Conversation. https://theconversation.com/happy-endings-the-ins-and-outs-of-clinical-sexology-36820
UPEI Introduction to Psychology 1 by Philip Smith is licensed under a Creative Commons Attribution 4.0 International License, except where otherwise noted.
Introduction to Human Sexuality by Ericka Goerling & Emerson Wolfe is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.